One of the most frustrating thing with chronic illness is making plans. For me, I know I need to make plans or else I will never leave my room but I also know there's a good chance those plans will have to be modified or cancelled. Contrary to popular belief, it's not because I don't… Continue reading “I’m Sorry, I Can’t”
It means I'm exhausted. I physically and mentally can't do anything anymore. The thought of moving a limb or even blinking seems impossible. It means I'm in so much pain (mentally, physically, sometimes both) that I no longer feel like I can continue living life. I can't cover up the pain anymore or control it.… Continue reading “I’m Tired”
John 10:10 "A thief comes only to steal and slaughter and destroy; I came so that they might have life and have it more abundantly." Living abundantly is a major theme in the Bible and it has been one that I have struggled with as a chronic illness sufferer. Truly "living life" is hard work!… Continue reading Living Life
We don’t realize it until it’s us, until it is our own lives that are falling, “apart.” Or how I like to look at it now, “falling into place.” For me, it was 6th grade. All my friends from elementary school had left me so I was faced with a new school and no friends… Continue reading Life isn’t fair, it sucks, and it’s messy.
"Yes, it's confusing. I look fine. But I'm not. I have a chronic illness. And... It's tough to explain... how hard it is." Sometimes you just have to lay it all out there and it's hard. It doesn't matter how long you have been dealing with things, as you list your illnesses, the complications, your… Continue reading “Yes, it’s confusing”
What networks or websites have you used for support or information about your illness? Brooke- When it came down to wanting to find handouts to give to school, family members, etc we found this website called dynakids which very easily explains my illness. There is a tab on it written for schools/teachers to understand what… Continue reading 30 Day Chronic Illness Challenge: Day 21
Briefly explain to a healthy person what it's like to live with the illness. Megan- Since for me I have had chronic migraine the longest I'm going to explain that to you. So imagine a normal headache then add in someone pounding on your head and a knife stabbing it. Along with that your eyesight… Continue reading 30 Day Chronic Illness Challenge: Day 12