Appointments

Blood of Life 

Can you guess what fun thing I did today?!  If you guessed blood work, you are correct!  I had to get blood drawn because I haven't had it done in a while and it is good to just check up on everything. Especially because my body/symptoms are so weird and complex.  I have gotten blood… Continue reading Blood of Life 

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Coping, General

“I’m Sorry, I Can’t”

One of the most frustrating thing with chronic illness is making plans. For me, I know I need to make plans or else I will never leave my room but I also know there's a good chance those plans will have to be modified or cancelled. Contrary to popular belief, it's not because I don't… Continue reading “I’m Sorry, I Can’t”

Coping, General

“I’m Tired”

It means I'm exhausted. I physically and mentally can't do anything anymore. The thought of moving a limb or even blinking seems impossible. It means I'm in so much pain (mentally, physically, sometimes both) that I no longer feel like I can continue living life. I can't cover up the pain anymore or control it.… Continue reading “I’m Tired”

Coping, General, Motivation/Inspo

Locked-In Throwback

About two and a half years ago I found myself at a LifeTeen (youth group) lock-in at my church. Before this point I had never been able to stay overnight at any activities because of my anxiety. This night I wanted to be different though but as everyone started getting ready for bed, I felt… Continue reading Locked-In Throwback

faith, Motivation/Inspo

What Will You Do When It Ends?

This post ties in with my previous post titled, Living Life. Often times I find myself thinking, "what will I do when things end?" "What will I do after college? What will I do after this appointment? What will I do after hanging out with this friend?" Instead of focusing on the moment, the here and… Continue reading What Will You Do When It Ends?